Daily Routine

Submitted by Laura on Tue, 08/16/2011 - 12:57am

Here is a glimpse of my day from the time I wake up until I go to bed.  You wouldn't think someone who didn't work would be THIS busy!!  It's time consuming to properly take care of myself while I wait for my transplant.

• Clumsily stumble out of bed at 7:30 AM to disconnect from nightly feeding tube.  Cough for 15 minutes and go back to sleep.
• Wake up for good at 11 - 11:30 am.  Cough and blow nose for 30 minutes.  Hug my doggies.
• 11:45 - 1:00 - Prepare and eat breakfast.  Do nasal wash and take morning medications. Give Chloe her medicine.
• 1:00 - 2:30 - Do first therapy and while doing so, multi-task: check my email, read a book, read CF forums, or write a blog.
• 2:30 - 3:30 - Prepare and eat lunch.
• 3:30 - 5:30 - Exercise at the hospital gym (M-W-F), otherwise do light chores, water the plants, see a movie, get some sunshine! 
• 5:30 - 6:30 - Recharge my batteries and rest or do another treatment.
• 6:30 - 8:00 - Prepare dinner and eat.
• 8:00 - 9:00 - Spend time with Joe.
• 9:00 - 11:00 - Treatment again. I do my vest therapy for 30 minutes and my Mom comes over nightly to do an extra hour of manual chest therapy (basically beats the mucus out of me).
• 11:00 - 11:30 - Get ready for bed....take medications, hook up to feeding tube, cough, get comfortable and sleeeeep!!!!

Whew!  This is a full time job, but I'm not complaining.  I'm just very lucky to have the resources available to me to stay home and take care of myself, so I have the best chance at a successful future and a successful lung transplant.  Thank you to everyone who supports me in my journey!  XO.