Tuesday, July 30, 2013

To All You Anonymous Donators Out There!

Submitted by Laura on Sat, 09/24/2011 - 1:20pm

Hello Anonymous Donators,
Since I am not able to directly mail you my personal thanks for supporting me on my journey through lung transplant, I am writing you a letter that I hope you will see online.
My sincere thanks and gratitude for your generous donations - you are giving me even more hope that after transplant, I will have the support I need to keep celebrating life to the fullest extent.  I look forward to getting back to my passions in life - cooking, helping others, exercising with my dogs, being active with my husband, celebrating with family and friends - and this will all be possible in part to what you've contributed.
Thank you again, and please continue to follow me on this journey through my blogs!
XO,

Laura


Who has questions?

Submitted by Laura on Fri, 09/09/2011 - 1:05am

Hello everyone!
I thought for this blog entry, I would let you pick the topic.  Are there any questions you want me to answer?  They can be transplant or CF related - or they can be anything you want (about life, me, etc.).  Post a question as a comment to this blog entry, in the Guestbook or email me atlauramanarik@yahoo.com and I will answer some questions for my next blog!

XO

Swim

Submitted by Laura on Tue, 08/23/2011 - 8:31pm

Today, someone told me to listen to the song "Swim" by Jack's Mannequin.  See the video on You Tube
This song is very inspiring.  My favorite lyric of the song is:
"You haven't come this far
To fall off the earth"
That is so true!  I have accomplished so much, but there is so much more I want to do and see!  I haven't come this far to just give up.  I vow to keep doing all of my therapies, exercise, eat, rest, and stay strong (both mentally and physically) before it's time to receive my gift of hope. I will remain positive and upbeat.  This is a promise to myself, my family and my friends.
XO, Laura 

P.S. Jack's Mannequin will be at Ravinia on 9/3, and I will be purchasing tickets!

Daily Routine

Submitted by Laura on Tue, 08/16/2011 - 12:57am

Here is a glimpse of my day from the time I wake up until I go to bed.  You wouldn't think someone who didn't work would be THIS busy!!  It's time consuming to properly take care of myself while I wait for my transplant.
  • Clumsily stumble out of bed at 7:30 AM to disconnect from nightly feeding tube.  Cough for 15 minutes and go back to sleep.
  • Wake up for good at 11 - 11:30 am.  Cough and blow nose for 30 minutes.  Hug my doggies.
  • 11:45 - 1:00 - Prepare and eat breakfast.  Do nasal wash and take morning medications. Give Chloe her medicine.
  • 1:00 - 2:30 - Do first therapy and while doing so, multi-task: check my email, read a book, read CF forums, or write a blog.
  • 2:30 - 3:30 - Prepare and eat lunch.
  • 3:30 - 5:30 - Exercise at the hospital gym (M-W-F), otherwise do light chores, water the plants, see a movie, get some sunshine! 
  • 5:30 - 6:30 - Recharge my batteries and rest or do another treatment.
  • 6:30 - 8:00 - Prepare dinner and eat.
  • 8:00 - 9:00 - Spend time with Joe.
  • 9:00 - 11:00 - Treatment again. I do my vest therapy for 30 minutes and my Mom comes over nightly to do an extra hour of manual chest therapy (basically beats the mucus out of me).
  • 11:00 - 11:30 - Get ready for bed....take medications, hook up to feeding tube, cough, get comfortable and sleeeeep!!!!

Whew!  This is a full time job, but I'm not complaining.  I'm just very lucky to have the resources available to me to stay home and take care of myself, so I have the best chance at a successful future and a successful lung transplant.  Thank you to everyone who supports me in my journey!  XO.

Joy In Making Others Happy


Submitted by Laura on Sat, 08/13/2011 - 3:03am

I get so much joy from making other people happy, surprising them when they're low, and doing little things to let them know I care.  No matter what I'm going through, I recognize everyone has stress in life and their problems are equally important as mine.  I want others to know that even though I may not physically be able to do things, I want to be emotionally there for my friends and family.  I enjoy this so much! 
Tonight, I threw a surprise birthday party for my husband and the look on his face when everyone came out of the hiding place at the bowling alley was priceless!  It filled me with such joy that I could fulfill his heart tonight with love and give him exactly what he's been needing. 
I made a banana cream pie last week, and when I heard it was my Uncle's favorite pie, I just had to be sure to get it to him because I know how hard he's been working in his job.  My friend is super stressed about moving and finding a new job, so I bought her a much needed massage and card.

These are the little things I love to do to show my love and I just hope I can continue to bring pieces of happiness to my friends and family everyday! It truly is one of the true joys in my life. XO!

Things I Look Forward To Doing After Transplant

Submitted by Laura on Sat, 08/06/2011 - 3:22pm

Today I was thinking about what a beautiful day it is outside and all of the things I would love to go out and do.  At this point in my life, I accept that life is sort of 'on pause' while I wait for my lungs. I still find joy in things every day.  However, I am optimistic that after my lung transplant, I will be able to accomplish all of the things below, and lead a more fulfilling life.
  • Taking a good, long deep breath without coughing
  • Taking the dogs to the dog park or on a hike
  • Dancing
  • Singing
  • Hosting family gatherings and cooking all of the food
  • Traveling
  • Skiing and sledding
  • First camping trip
  • Bike riding (although Joe found a good alternative today! see photo)
  • Moving into a house with a yard
  • Baking and cooking
  • Volunteering
  • Keeping up with my hubby!
Thank you for supporting me in my transplant journey!
XO Laura

Monday, October 24, 2011

Anger

I am angry at the world today.  It has been an unusually tough week, but today just seems like the tipping point.  I want to just blow up and unfortunately, it is my husband who is the only human here for me to yell at.  I have managed to avoid yelling at him so far, but I need an outlet and I need it quick.  I already tried one thing: I went over to him and I told him to just ignore my nasty look for a few seconds.  So, I then proceeded to give him a dirty look and run all of my angry thoughts through my head in rapid speed, hoping that if I just thought them and not said them, that it would make me feel better.  It didn’t.

I am now up here blogging, still trying to figure out WHY I am mad, hoping this will relieve my stress.  I think it’s a lot of things.  This week was already difficult due to finding out my LAS score was increased to the point that I could expect a call for transplant any day (Read more here).  I wasn’t really thinking about transplant that much, but this magic number of 40 just all of a sudden made it so real for me.

Second, Joe hurt his hand during a camping trip (Read more here) this weekend.  I am angry at the situation of course, I am NOT directly angry at Joe – accidents happen.  I am just angry because I didn’t really want him to go on this trip in the first place, and if he wouldn’t have gone, he wouldn’t be injured.  He is now limited in some of the ways that he’s been helping me (including ability to do hand treatments) and it just isn’t the right time for this at all, especially because I may be called for transplant.  I KNOW he’s really upset about it too, so I have not given him a hard time at all about it, because that is the last thing he needs.  I want to be supportive while he heals, but right now I am just so angry about the situation, I want to scream. SO I AM SCREAMING RIGHT NOW!!!!!   I am totally holding in all this emotion right now and it’s putting me in a really bad state of mind.

Third, I am mad at myself for being lax these past two weeks about getting my butt to rehab.  I only went once last week and it was realllllllly hard for me to get there today.  I’ve just been so depressed these past two weeks, but I know in my heart that I will feel better after I work out, so I just need to get back into it.

I have just been on such a streak of positive-ness, that I suppose a funk was bound to happen, especially with these events occurring all in the same week.  I just need to find a way to vent, let it out and get positive again without taking it out on my spouse.  That certainly won’t make anything better.  I feel a little better now that I typed all of this out.  Hopefully a good night’s sleep and good news tomorrow for Joe’s hand surgery (positive thought!) will turn my frown upside down.