Submitted by Laura on Wed,
01/09/2013 - 8:56pm
The last few days have
been a blur! I am stable in terms of pain and lungs, so it feels like I
should have been home by now, but I'm still here at Loyola. My liver
enzymes have been slowly coming down, so the doctor tried to introduce
posiconazole last night, and my liver enzymes spiked again. Therefore,
they have definitely figured out the high liver enzymes are due to anti-fungal
drugs. I have to stop taking those, and breath in Amphiteracin B, which
is a nebulized anti-fungal drug.
The last few days have
basically consisted of tweaking my insulin pump settings overnight and praying
it brings down my sugars enough so I can go home. The last 3 days haven't
worked, so I am hoping we can figure this out by Friday, so I can be discharged
and be home for the weekend! Tuesday was a very frustrating, because they
were 95% sure I would be going home. Nurse Erin came in the morning and
was getting me all set to leave, but then I went down to get an ultrasound of
my legs to check for clots (I have none), and when I came back, I found out I
wasn't going home. I cried....and cried....I was pretty upset, but after
thinking about it, it makes sense that I need to stay. I don't want to go
into some diabetic coma at home. So, I'm okay with all of it....just as
long as I'm home on Saturday! =)
I've been walking pretty
far. I did 6 loops around the floor, which is 2/3 of a mile. Joe
has visited each night. I had a great time meeting Gina Lombardi, who is
the friend of another transplant patient I met online. Gina visited me 2
days ago, brought me some wonderful nail polish, and we had a great time
getting to know eachother a bit. Funny how lung transplant helps you make
new friends!!! My aunt Jane visited me today and we had a nice time
together. She brought me a late birthday gift, and I will be enjoying my
favorite tea in my new teacup! Thanks Janie-bird =).
Overall I'm in a good
place. I get better each day! The only thing that I cannot stand is
this hospital food. I just really don't have an appetite. I started
a 'meal list' for home, planning what dinners I want when I get home. Yum.
I am going to ask everyone to pray that we figure out these sugars and I
can get home by Saturday!
Also, I am praying for
everyone that they don't get this dumb flu that is going around!!
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