Submitted by Laura on Sat,
07/21/2012 - 11:33pm
I don't want to jinx
myself, but I've been feeling pretty good this week. I've had some extra
spoons to use this week, I guess! (See this blog from
fellow tx patient re: Spoon Theory). This week, I spent Saturday mattress
shopping, Sunday visiting with my grandma/aunt/mom playing cards, exercised on
Monday, ran bedding/pillow shopping errands and got my hair done on Tuesday,
completed bedding shopping on Wed. and cooked dinner, saw a movie with Mom
Thursday, did bedding laundry and picked up the house Friday in preparation for
our mattress delivery, and today cooked breakfast, picked up the house more,
dusted our bedroom, went to a brewery and classic car night at Dog N' Suds.
Tomorrow I am contemplating the Museum of Science and Industry.
Now, with all of this
extra energy and ability I seem to be having, I also am just WAITING for the
minute that I CRASH AND BURN! With all this activity, I just know it's
coming! However, I'm not going to stop doing stuff and just sit around
waiting to be tired - when the crash happens, it happens. All I can
realistically do is be prepared to turn my little butt around and get home
for some R & R. I did have to make some informed decisions regarding
WHICH activities I could do today (walking around a fair = no, sitting at a
brewery = yes). When you're ill, these are the moments you have to be prepared
for and accept. I just look forward to the time when I don't have to
forgo activities because walking from the car to someplace is simply too far.
I can't wait to stop being left out of activities simply because I cannot
breathe.
Of course I realize that
transplant is not a cure - you're trading one set of 'problems' for another -
but if I can breathe easy, I think I will be able to deal with the 'other
stuff'.
XO
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